Pituitary conditions are rare, about 80,000 people in the UK are affected. Imagine how lonely, isolating and often frightening it is to be told you have a pituitary tumour or disorder. You have no idea what that means and no one around you knows or possibly understands either. The majority of patients wait for years to be diagnosed and then may need surgery, radiotherapy and possibly replacement hormones treatment for the rest of their lives.
Having a pituitary condition can affect you both physically and emotionally. For some patients it is a long term condition and can have a debilitating effect on their quality of life.
The Pituitary Foundation is the only charity in the UK and Republic of Ireland for pituitary patients and their families. Every year we provide support to thousands of adults and also help parents of children who are affected through services such as: Helplines, Local Support Groups, Telephone Buddies and Information Publications.
Patient Information and Support Helpline 0845 450 0375.