Dystonia UK is the only UK wide organisation driven to ensure that the 100,000 people across the country with dystonia have access to crucial information, support, and essential treatment.
We exist to give hope and support to those living with dystonia, creating UK and worldwide awareness. In addition to our UK support groups, advocacy, consultancy and social media forums, Dystonia UK also runs regional events, conferences and the Dystonia Matters magazine.
We work with thousands of people each year aiming to improve the quality of life of people with dystonia by reducing diagnosis delays, improving awareness, promoting best practice and supporting research into treatments.
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